New from the CDC:
Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Diagnostic and Communication Case Study for Health Care Providers in Training
Free:
https://www.mededportal.org/doi/10.15766/mep_2374-8265.11507
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Cartoon from 2004 I found when doing a clear out:
"Sodham Hall ME/CFS clinic. CBT & GET our speciality!"
It was drawn by Trish Campbell and I was given permission to use it at the time.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
Gestern fing es an, heute dann leider ein Crash trotz Pacings. Ich dachte schon, es ginge mal länger gut. #Mecfs
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From "Shame, Psychology and ME" by Richard and Katharine Cheston
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Thread where I'm going to post some slides from this sympathetic February presentation "Shame, Psychology and ME"
https://uwe-repository.worktribe.com/output/13780159
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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"The short escapades of the summer and autumn of 2014 meant I took the energy I used to keep my house in order and put it elsewhere. But I couldn’t take that energy indefinitely, and even if I could have ignored our house chores forever, or hired help, I was still done for by the autumn of 2014 and in need of ample rest in order to return to my baseline."
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“And so, I repeated myself as I once again explained living with ME was and is living on a see-saw. I give energy to one thing and take it from another.”
A short blog post from a published Irish writer with ME where she bemoans having to explain that energy is limited in ME so if you do one thing, you have less energy for other things.
https://solongasicanbreathe.wordpress.com/2025/03/10/elastic-bands-evs-and-repetition/
#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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"Chronic lung disease, high blood pressure, weakened immune system, chronic fatigue syndrome or #fibromyalgia (aOR = 2.20), & arthritis were associated with a higher odds of more severe Covid19 infection"
https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-025-22041-7
#MEcfs @mecfs @covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
@longcovid
#LongCovid
A Living Memorial to Joan Livingston – 1954 - 2025
Full article:
https://www.massmecfs.org/newsletters/918-spotlight-joan-livingston-mar-25
Image from Massachusetts ME/CFS & FM Association March 2025 e-newsletter:
https://massmecfs.org/newsletters/919-2025-03-march-newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
(VIC & NSW, Australia)
Donate a blood sample to the AusME Biobank
https://ausmeregistry.org/
From Emerge Australia e-newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
From Iraq:
Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs
the author of the article i shared above needs help!
Critical Healthcare Support for Victoria
https://www.gofundme.com/f/help-vs-medical-expenses
Venmo: itssvee
I've been following @jennylam on my personal acct for a while, and always appreciate what she brings to both The Art World and the Fediverse.
Today I'm really, deeply honored to share that work from @illmarks , my Visualizing Long Covid project, will be in Volume 2 of Laminator!
Beyond the honor of being amongst so many amazing international artists, I know every moment of representation for ppl w/ post-acute infection syndromes like #longcovid & #mecfs are solace to our communities.
@futzle Mother Woila is a mountain in a remote & extremely wild part of Deua National Park in NSW. The navigation to get there is very challenging, through precipitous hill-spur country. I twice attempted the infamous Woila Circuit and failed both times, but fully intended to keep going back until I'd succeeded. Alas, #mecfs had other ideas, but I try to hold onto that wild version of myself.
Anyway, I desperately needed to replace my teenage username of StickyVelvet (I know ....), and WildWoila was a whole lot more palatable.
Which begs the question: what terrible internet handles do people have hidden in the closet?